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Wednesday, March 9, 2011

Moyamoya?

Grammy Jean is being told she needs surgery for her aortic aneurysm (latest size 5.2 cm). Grammy is scheduled for surgery with Dr. Dang in HI, but I am wondering if she should come here and have the thoracic aneurysm group at Mass General give her a third opinion. Boston is a medical mecca that draws not just the sickest patients, but also the best doctors. We'll see what Grammy thinks. She does need the surgery soon...

In the meantime, please please keep her calm. She needs to ensure her blood pressure does not rise, per Dr. Dang. No smoking, no stress! And someone needs to keep an eye on her in Vegas (wish she was not going!)

On a related topic, I discovered some interesting information about something called moyamoya disease. (Moyamoya means puff of smoke in Japanese.) It's rare in non-Asians, more common in Japanese and other Asians, and appears to be hereditary at least 10% of the time. Luckily, it's very treatable with surgery.

Below is one (haole) man's story. Terrible headaches started at age 18, eventually followed by tremors and transitory numbness in fingers in his 30s. Had surgery in his 40s and is now doing well it would appear. (Steph, don't mean to scare you with MY hypochondria, but did your doctors consider this re: your headaches?)

Could Uncle Allen have had moyamoya disease? Did he have headaches for a long time? Moyamoya usually affects children or women in their 3rd to 4th decades, but about 1/3 of sufferers are men. And of course Uncle was Japanese-American.

More info about Moyamoya:



Do I have moyamoya? I don't think so. I had an MRI of my noggin a couple of years ago because I had this weird stabbing pain at the back of my head that throbbed and didn't go away for a couple of months. The twins were a couple of months old (hmmm!) No problems detected, no aneurysms either. I hope IF it is in our family that I didn't pass it to my babies.

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